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GUESTBOOK
This guestbook is now CLOSED! Please use the new guestbook
Will <Email address not supplied>
No town/city, No county/state, No country - 09:10:09 Tuesday 19 April 2005
Well-presented and informative. Very interesting to compare procedures for day curve tests around the country as there are clearly many differences.
Julie Watson <jw17@soton.ac.uk>
Southampton, Hants., UK - 08:04:07 Tuesday 05 April 2005
My sister was diagnosed with addison's diease when she was 13 years old, but had the symptons since 11. Shes is now 36years old and has developed underactive thyroid, problems and severe on going throat infections which she has been told is from the long term use of steroids. I would like to know more about the long term effects of the medication she is on and how this diease will continue to develope.
Glad to have found this site.
Jilly T <Mischiefsmuse@yahoo.co.uk>
Brecon, Powys, Wales UK - 11:07:30 Saturday 02 April 2005
Hi, my name is Tracy, and I am searching for diagnosis and treatment for our 16 year old son, who has been chronically ill since November, 2003. Have searched his symptoms and come to the conclusions he either has CFS or Adrenal insufficiency. Awaiting labs to confirm it, or a doctor who is in the know to recognize it and treat him. Nice to be here! ~ Tracy
Tracy <lkeraly@cox.net>
Wichita, Kansas, USA - 16:42:42 Tuesday 08 March 2005
web site excellent. Diagnosed with Addison's and hypothyroidism in 2002
Linda Burridge <LBurr77314@aol.com>
Bridgend, Mid Glamorgan, wales - 14:24:19 Wednesday 02 March 2005
This is the first time I have visited a web site dedicated to addison@s disease. I was diagnosed in 1995 after a long illness. In February 2005 I was diagnosed with oral Lichen Planus ( another auto immune disease).I am amazed at the number of people that suffer with this disease.
I am 43yrs old, in a good physical state, I work long hours. I have a family of 3 children aged 14, 13 and 4 and a supportive wife.Your web site is fantastic and really beneficial to newly dianosed.
P.S. You look identical to me on family photographs,most people think I am Italian or Asian. I never correct them. Best of luck for the future.
Regards
David Hawkins
David Hawkins <hawkins365@msn.com>
Wakefield, West Yorkshire, England - 20:48:00 Sunday 13 February 2005
Hello. I am 13 years old and this site really helped me
Josh Wallach <josh_music@hotmail.com>
Wassenaar, ASH, The Netherlands - 08:50:02 Tuesday 07 December 2004
hi everyone ,great site shame theres not a uk one.i was diagnosed with schmidst this year although ive had addisons for 14 years .Looking to chat to people the same as me ?
james <aronecasino@aol.co.uk>
london, No county/state, england - 12:19:06 Thursday 25 November 2004
I find it quite helpful. But really i find that no 2 people are alike. I was diagnoised with addisons on the 1st. September 2004. AFTER A VERY LONG ILLNESS.
i'M ON Del-tacortril-ent-.5 am. 2.5pm.daily and floranife half every other day. Id love to hear from people here in Ireland as i have no one to relate to . Thank you so much for this web site Nuala
Nuala Wickham Mc Carthy <lakeview2002@eircom.net>
Wexford, Ireland, Ireland - 15:22:44 Monday 22 November 2004
My wife has just been diagnosed with addisons she has also been on thyroxone for a few months and i am trying to find out as much about addisons as i can any feed back is much appreciated
FRANK RICHER <frankricher@5winston.fsnet.co.uk>
ipswich, suffolk, uk - 21:48:46 Sunday 14 November 2004
Good website thankyou,I am 26 years old i have only just been diagnosed with Pituritary Addisons disease,I only started medication 3 days ago and already feel normal again!!!! I am trying to find out as much as possible about it. One thing i would really like to know is if people have become pregnant whilst having addisons, i am currently trying for another baby, but appear to have problems ovulating so waiting for fertilty drug to be started.Would love to hear from others.
Gemma Coventry <gemma_budgen@hotmail.com>
Bracknell, Berkshire, England - 14:22:55 Thursday 04 November 2004
I have been living with addison's for 13 years now. It is all about your medication. I too gained 40lbs in 6 months but after a few years I joined weight watchers and took the weight off and have kept it off. It has taken me some time to get use to all the medications. I take hydrocortisone, florinif, levothyroxin, and hormone supliments because I have gone through menopause at 29. I now am 43. Every year it seems I need to take something else, I now am B12 deficient and Iron deficient so I need to take suplements for that. I also need to take testosterone every other day. I find my doctor is great at explaining why I need to take more pills as my disease progresses. By taking the medicines I can lead a great life. I exersise daily, have run 25k (have now given up running due to heel spurs)and run a very busy retail store requiring long hours and some stressful situations. When I feel very stressed I take a bit more of my hydrocortisone but prefer to handle the stress by using a time out like going for a walk around the block. I do find that if I take too much hydrocortisone I need to burn off some of the juice or I'll be in a sour mood. I have switched the times I take my meds. I take my second dose around 4pm which really works for me. If some one just met me they would never know I have this illness and I love that. Take heart, there is a hope for a normal life. I have even gone on an extreem vacation to Costa Rica where I went repelling down waterfalls and on long jungle hikes. (much to my families dismay) I just make sure my travelling partner has a list of my meds and try not to worry. Hope this letter can help those of you who feel alone. You will learn to live with the illness but make sure you have an open dialogue with your doctor.
janet braam <janeybraam@yahoo.com>
Toronto, Ontario, Canada - 03:14:32 Thursday 04 November 2004
I JUST DISCOVERED THIS WEBSITE. I AM 28 YRS OLD. AND I WAS DIAGNOSED WITH SCHMIDTS 4 YEARS AGO. I HAVE BEEN THROUGH THE UPS AND DOWNS. THIS YEAR I HAVE BEEN IN HE HOSPITAL 2 TIMES WITH AN ADDISONIAN CRISIS. ALMOST WENT INTO A COMA BOTH TIMES. I NOW TAKE 6 PILLS A DAY. I FEEL SICK ALL THE TIME. NOBODY IN MY FAMILY UNDERSTANDS WHY I AM ALWAYS IN BED. I TRIED TO EXPLAIN BUT THEY STILL THINK IM WRONG. I TRY TO KEEP A JOB BUT I GET SICK AND THE BOSS DOESNT UNDERSTAND WHY I KEEP CALLING OFF SICK SO I LOSE MY JOB. I WENT FROM 130 LBS TO BARELY 100. DONT HAVE INSURANCE AND IM AFRAID IF I DONT GET HELP SOON I WONT BE AROUND.
amy gauthier <amg5636@hotmail.com>
lincoln park, michigan, us - 17:08:27 Wednesday 27 October 2004
hi um ur website is coooooooooooooooooooool i like pandas um yeah its cooooooooooooool oops i think i already sed that oh well cooooooooooooool we got dama next um bi
kit xxxxxxxxxxxxx
kitty <chocciequeen2004@yahoo.co.uk>
ashburnham, e. sussex, england - 10:01:11 Thursday 21 October 2004
hi, to everyone.Addisons has been a part of my life since i was 29yrs old. I went threw per-menapause,thyriod mess up and overies shut down.Gall-bladder was out and I almost lost the game of living.You can see they found out that I had Addisons. I still work full time because I need insurnce to keep up the hospital bills.Summer is worse for mebecause of heatbut winter can be bad to. (TO cold)I am having lots trouble with aching all over.It seem like every time I go to specialist something else shows up.I do not quit I will never quit this battle. My addison is not genicand know one has it my family.I have 3 beautiful children, and hope to be grandmother sometime .I lost 50 # and it did make feel better. take care di
Diane Ackerman <rosiecna@mhtc.net>
Madison, WI, USA - 21:26:04 Sunday 17 October 2004
iam grateful i found your web site my daughter is 14 has been ill since last feb 2004 we have gone to 5 specialist who say they cant find anything but know she is sick she ha an enlarged thyroid sever back pain cant tolerate cold missed periods weight gain mainly in stomach area which looks unusual they did an acth test but it was done impropoperly im aalmost certain that she has an adrenal problem petion our hmo network to go to mayo clinis but they wont let us going to riley childrens hospital friday sept 24 please help me if you know any doctors who will listen or can help us it is her first year of high school and she is getting really depressed she feels that her world has come to an end why is it so hard to get diagnosed im afraid she will go into crisis before we can get her any help please help me if you can
c parsons <georgiapeach887@aol.com>
muncie, in, delaware - 22:36:50 Wednesday 15 September 2004
I was very happy to find your website. I have been heavily researching Addison's (and polling some Addisonians) to find out as much as possible. Our 15 year old son has many symptoms that sound adrenal, and has been chronically ill since November 2003. We are still seeking diagnosis and testing for his adrenals. We have a Nov. 2 appointment with an endo who currently sees our 10 year old son, who was just diagnosed with Type I Diabetes last Jan. Thank you for sharing! ~ Tracy
Tracy Keraly <lkeraly@cox.net>
Wichita , Kansas, USA - 20:16:42 Monday 13 September 2004
It is a pleasure to meet so much people having a common situation. I had the syndrome of Cushing in 1999 and they had to remove my adrenal glands. In the beginning I was constantly depressed and tired. I felt I was loosing the battle, but since a year of three, everything is going well. I am a father of a beautiful girl and I am married to the most wonderful woman you could imagine. I will be father for the second time. I thank God for this miracle and I want to say to everyone, never give up, everything is possible by hanging on. May God bless you all.
Jamai Jesse Nasser <iontrade@pandora.be>
Temse, East of Flanders, Belgium - 13:29:14 Thursday 26 August 2004
Hi I love this site ....I came down with this diease in 94...I have addisons diease and schmidts syndrom.I dont know how any one can work. I never gained weight I lost.I take eltroxin (throid),cortisone and florinef.
Deb <cuzzie12345@hotmail.com>
Toronto, Ontario, Canada - 22:35:46 Tuesday 24 August 2004
I am 35 years old and was diagnosed when I was 12 with Addisons. Since the medicine, I have been fairly healthy. When I get sick it takes me longer to get better and I am tired a lot, but that is most of the bad. I have 2 healthy children and feel very blessed. It is great to have a site and know that other people have this too. I have never met anyone with my dieaase. I knew it wasn't common because it took them over a year to diagnose me. It was a very tough year. I was in the hospital most of that year and I almost died. Thanks to my family doctor I am writing you today.
Pacy Adams <padams@kmodevelopment.com>
Tulsa, OK, USA - 21:01:20 Tuesday 24 August 2004
I'm a 26 year old female who was diagonised with Addison's last year, i am also diabetic (since being 18). Is there anyone else who suffers from both
Sarah Stoner <sstonerno1@hotmail.com>
Manchester, GTR Manchester, UK - 15:08:51 Friday 20 August 2004
I have had Addison's for 30 years. I take 45 mg, 35 am 10 pm, of Hydrocortisone and .1 mg of Florinef. I have been well for most of the 30 years but the 5 years it took to diagnose the disease were hell.
At 58 I am now have some problems with irregular heartbeat and I was wondering if anyone else had had this problem.
Carl Showers <carl.e.showers@verizon.com>
Davidsonville, Maryland, USA - 11:37:41 Friday 13 August 2004
we need all the information we can get,and your web site will help. I am concerned about the pills and medication .I sometimes wonder if we infact are used as guinea pigs . I get the impression that some doctors think that one size fits all,....it does not.I have a dauaghter with Addisons and I have Hashimoto disease. I am on Synthroid, and wonder if the drug is causing headaches that I experience every day
Karen Matthews <Kathleengib@aol.com>
Toronto, Ontario, Canada - 00:42:47 Friday 13 August 2004
I have viewed your website and like what I see. I am 36 years old and was diagnosed with Addison's Disease in August of 2001. I also have Hypothyroidism and I went through menapause at 27. My daughter (age 14) also suffers from Auto-Immune disorders such as diabetes, hypothyroidism and alopecia. We are both suffering from weight gain and would love to hear some good advice on how to lose weight even with low thyroid, addisons, and diabetes stacked against us.
Belinda Chappell <bmc210v@yahoo.com>
North Richland Hills, Texas, USA - 03:30:33 Sunday 23 May 2004
This guestbook is now CLOSED! Please use the new guestbook
Will <Email address not supplied>
No town/city, No county/state, No country - 09:10:09 Tuesday 19 April 2005
Well-presented and informative. Very interesting to compare procedures for day curve tests around the country as there are clearly many differences.
Julie Watson <jw17@soton.ac.uk>
Southampton, Hants., UK - 08:04:07 Tuesday 05 April 2005
My sister was diagnosed with addison's diease when she was 13 years old, but had the symptons since 11. Shes is now 36years old and has developed underactive thyroid, problems and severe on going throat infections which she has been told is from the long term use of steroids. I would like to know more about the long term effects of the medication she is on and how this diease will continue to develope.
Glad to have found this site.
Jilly T <Mischiefsmuse@yahoo.co.uk>
Brecon, Powys, Wales UK - 11:07:30 Saturday 02 April 2005
Hi, my name is Tracy, and I am searching for diagnosis and treatment for our 16 year old son, who has been chronically ill since November, 2003. Have searched his symptoms and come to the conclusions he either has CFS or Adrenal insufficiency. Awaiting labs to confirm it, or a doctor who is in the know to recognize it and treat him. Nice to be here! ~ Tracy
Tracy <lkeraly@cox.net>
Wichita, Kansas, USA - 16:42:42 Tuesday 08 March 2005
web site excellent. Diagnosed with Addison's and hypothyroidism in 2002
Linda Burridge <LBurr77314@aol.com>
Bridgend, Mid Glamorgan, wales - 14:24:19 Wednesday 02 March 2005
This is the first time I have visited a web site dedicated to addison@s disease. I was diagnosed in 1995 after a long illness. In February 2005 I was diagnosed with oral Lichen Planus ( another auto immune disease).I am amazed at the number of people that suffer with this disease.
I am 43yrs old, in a good physical state, I work long hours. I have a family of 3 children aged 14, 13 and 4 and a supportive wife.Your web site is fantastic and really beneficial to newly dianosed.
P.S. You look identical to me on family photographs,most people think I am Italian or Asian. I never correct them. Best of luck for the future.
Regards
David Hawkins
David Hawkins <hawkins365@msn.com>
Wakefield, West Yorkshire, England - 20:48:00 Sunday 13 February 2005
Hello. I am 13 years old and this site really helped me
Josh Wallach <josh_music@hotmail.com>
Wassenaar, ASH, The Netherlands - 08:50:02 Tuesday 07 December 2004
hi everyone ,great site shame theres not a uk one.i was diagnosed with schmidst this year although ive had addisons for 14 years .Looking to chat to people the same as me ?
james <aronecasino@aol.co.uk>
london, No county/state, england - 12:19:06 Thursday 25 November 2004
I find it quite helpful. But really i find that no 2 people are alike. I was diagnoised with addisons on the 1st. September 2004. AFTER A VERY LONG ILLNESS.
i'M ON Del-tacortril-ent-.5 am. 2.5pm.daily and floranife half every other day. Id love to hear from people here in Ireland as i have no one to relate to . Thank you so much for this web site Nuala
Nuala Wickham Mc Carthy <lakeview2002@eircom.net>
Wexford, Ireland, Ireland - 15:22:44 Monday 22 November 2004
My wife has just been diagnosed with addisons she has also been on thyroxone for a few months and i am trying to find out as much about addisons as i can any feed back is much appreciated
FRANK RICHER <frankricher@5winston.fsnet.co.uk>
ipswich, suffolk, uk - 21:48:46 Sunday 14 November 2004
Good website thankyou,I am 26 years old i have only just been diagnosed with Pituritary Addisons disease,I only started medication 3 days ago and already feel normal again!!!! I am trying to find out as much as possible about it. One thing i would really like to know is if people have become pregnant whilst having addisons, i am currently trying for another baby, but appear to have problems ovulating so waiting for fertilty drug to be started.Would love to hear from others.
Gemma Coventry <gemma_budgen@hotmail.com>
Bracknell, Berkshire, England - 14:22:55 Thursday 04 November 2004
I have been living with addison's for 13 years now. It is all about your medication. I too gained 40lbs in 6 months but after a few years I joined weight watchers and took the weight off and have kept it off. It has taken me some time to get use to all the medications. I take hydrocortisone, florinif, levothyroxin, and hormone supliments because I have gone through menopause at 29. I now am 43. Every year it seems I need to take something else, I now am B12 deficient and Iron deficient so I need to take suplements for that. I also need to take testosterone every other day. I find my doctor is great at explaining why I need to take more pills as my disease progresses. By taking the medicines I can lead a great life. I exersise daily, have run 25k (have now given up running due to heel spurs)and run a very busy retail store requiring long hours and some stressful situations. When I feel very stressed I take a bit more of my hydrocortisone but prefer to handle the stress by using a time out like going for a walk around the block. I do find that if I take too much hydrocortisone I need to burn off some of the juice or I'll be in a sour mood. I have switched the times I take my meds. I take my second dose around 4pm which really works for me. If some one just met me they would never know I have this illness and I love that. Take heart, there is a hope for a normal life. I have even gone on an extreem vacation to Costa Rica where I went repelling down waterfalls and on long jungle hikes. (much to my families dismay) I just make sure my travelling partner has a list of my meds and try not to worry. Hope this letter can help those of you who feel alone. You will learn to live with the illness but make sure you have an open dialogue with your doctor.
janet braam <janeybraam@yahoo.com>
Toronto, Ontario, Canada - 03:14:32 Thursday 04 November 2004
I JUST DISCOVERED THIS WEBSITE. I AM 28 YRS OLD. AND I WAS DIAGNOSED WITH SCHMIDTS 4 YEARS AGO. I HAVE BEEN THROUGH THE UPS AND DOWNS. THIS YEAR I HAVE BEEN IN HE HOSPITAL 2 TIMES WITH AN ADDISONIAN CRISIS. ALMOST WENT INTO A COMA BOTH TIMES. I NOW TAKE 6 PILLS A DAY. I FEEL SICK ALL THE TIME. NOBODY IN MY FAMILY UNDERSTANDS WHY I AM ALWAYS IN BED. I TRIED TO EXPLAIN BUT THEY STILL THINK IM WRONG. I TRY TO KEEP A JOB BUT I GET SICK AND THE BOSS DOESNT UNDERSTAND WHY I KEEP CALLING OFF SICK SO I LOSE MY JOB. I WENT FROM 130 LBS TO BARELY 100. DONT HAVE INSURANCE AND IM AFRAID IF I DONT GET HELP SOON I WONT BE AROUND.
amy gauthier <amg5636@hotmail.com>
lincoln park, michigan, us - 17:08:27 Wednesday 27 October 2004
hi um ur website is coooooooooooooooooooool i like pandas um yeah its cooooooooooooool oops i think i already sed that oh well cooooooooooooool we got dama next um bi
kit xxxxxxxxxxxxx
kitty <chocciequeen2004@yahoo.co.uk>
ashburnham, e. sussex, england - 10:01:11 Thursday 21 October 2004
hi, to everyone.Addisons has been a part of my life since i was 29yrs old. I went threw per-menapause,thyriod mess up and overies shut down.Gall-bladder was out and I almost lost the game of living.You can see they found out that I had Addisons. I still work full time because I need insurnce to keep up the hospital bills.Summer is worse for mebecause of heatbut winter can be bad to. (TO cold)I am having lots trouble with aching all over.It seem like every time I go to specialist something else shows up.I do not quit I will never quit this battle. My addison is not genicand know one has it my family.I have 3 beautiful children, and hope to be grandmother sometime .I lost 50 # and it did make feel better. take care di
Diane Ackerman <rosiecna@mhtc.net>
Madison, WI, USA - 21:26:04 Sunday 17 October 2004
iam grateful i found your web site my daughter is 14 has been ill since last feb 2004 we have gone to 5 specialist who say they cant find anything but know she is sick she ha an enlarged thyroid sever back pain cant tolerate cold missed periods weight gain mainly in stomach area which looks unusual they did an acth test but it was done impropoperly im aalmost certain that she has an adrenal problem petion our hmo network to go to mayo clinis but they wont let us going to riley childrens hospital friday sept 24 please help me if you know any doctors who will listen or can help us it is her first year of high school and she is getting really depressed she feels that her world has come to an end why is it so hard to get diagnosed im afraid she will go into crisis before we can get her any help please help me if you can
c parsons <georgiapeach887@aol.com>
muncie, in, delaware - 22:36:50 Wednesday 15 September 2004
I was very happy to find your website. I have been heavily researching Addison's (and polling some Addisonians) to find out as much as possible. Our 15 year old son has many symptoms that sound adrenal, and has been chronically ill since November 2003. We are still seeking diagnosis and testing for his adrenals. We have a Nov. 2 appointment with an endo who currently sees our 10 year old son, who was just diagnosed with Type I Diabetes last Jan. Thank you for sharing! ~ Tracy
Tracy Keraly <lkeraly@cox.net>
Wichita , Kansas, USA - 20:16:42 Monday 13 September 2004
It is a pleasure to meet so much people having a common situation. I had the syndrome of Cushing in 1999 and they had to remove my adrenal glands. In the beginning I was constantly depressed and tired. I felt I was loosing the battle, but since a year of three, everything is going well. I am a father of a beautiful girl and I am married to the most wonderful woman you could imagine. I will be father for the second time. I thank God for this miracle and I want to say to everyone, never give up, everything is possible by hanging on. May God bless you all.
Jamai Jesse Nasser <iontrade@pandora.be>
Temse, East of Flanders, Belgium - 13:29:14 Thursday 26 August 2004
Hi I love this site ....I came down with this diease in 94...I have addisons diease and schmidts syndrom.I dont know how any one can work. I never gained weight I lost.I take eltroxin (throid),cortisone and florinef.
Deb <cuzzie12345@hotmail.com>
Toronto, Ontario, Canada - 22:35:46 Tuesday 24 August 2004
I am 35 years old and was diagnosed when I was 12 with Addisons. Since the medicine, I have been fairly healthy. When I get sick it takes me longer to get better and I am tired a lot, but that is most of the bad. I have 2 healthy children and feel very blessed. It is great to have a site and know that other people have this too. I have never met anyone with my dieaase. I knew it wasn't common because it took them over a year to diagnose me. It was a very tough year. I was in the hospital most of that year and I almost died. Thanks to my family doctor I am writing you today.
Pacy Adams <padams@kmodevelopment.com>
Tulsa, OK, USA - 21:01:20 Tuesday 24 August 2004
I'm a 26 year old female who was diagonised with Addison's last year, i am also diabetic (since being 18). Is there anyone else who suffers from both
Sarah Stoner <sstonerno1@hotmail.com>
Manchester, GTR Manchester, UK - 15:08:51 Friday 20 August 2004
I have had Addison's for 30 years. I take 45 mg, 35 am 10 pm, of Hydrocortisone and .1 mg of Florinef. I have been well for most of the 30 years but the 5 years it took to diagnose the disease were hell.
At 58 I am now have some problems with irregular heartbeat and I was wondering if anyone else had had this problem.
Carl Showers <carl.e.showers@verizon.com>
Davidsonville, Maryland, USA - 11:37:41 Friday 13 August 2004
we need all the information we can get,and your web site will help. I am concerned about the pills and medication .I sometimes wonder if we infact are used as guinea pigs . I get the impression that some doctors think that one size fits all,....it does not.I have a dauaghter with Addisons and I have Hashimoto disease. I am on Synthroid, and wonder if the drug is causing headaches that I experience every day
Karen Matthews <Kathleengib@aol.com>
Toronto, Ontario, Canada - 00:42:47 Friday 13 August 2004
I have viewed your website and like what I see. I am 36 years old and was diagnosed with Addison's Disease in August of 2001. I also have Hypothyroidism and I went through menapause at 27. My daughter (age 14) also suffers from Auto-Immune disorders such as diabetes, hypothyroidism and alopecia. We are both suffering from weight gain and would love to hear some good advice on how to lose weight even with low thyroid, addisons, and diabetes stacked against us.
Belinda Chappell <bmc210v@yahoo.com>
North Richland Hills, Texas, USA - 03:30:33 Sunday 23 May 2004
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